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This a constant work in progress, I'm not familiar with blogging. I do the best I can to find info and I'm always open to suggestions, topics whatever you think is important to us the elders of PKU

Friday, April 22, 2011

Metabolic Formula Options


Waaay back in the 60's-70's the only metabolic formula that was available was Lofenalac I was a strange child I loved the formula straight with no flavor additions and warm.   Nowadays there's a wide variety of metabolic formula. Most I've tried tasted like jock-socks.  Of course that's my opinion.  The only one that was tolerable is to me was unflavored Periflex only because I tasted similar to Lofenalac but eventually caused lower GI problems. 


After 12 years on the Periflex It eveutually ate through my enamel.  No one told me that I needed to take extra care of my teeth, I was ignorant.   I lost them 2 years ago.  So if you still have your teeth, it's not too late, I would suggest the new toothpastes that contains something that strengthens enamel.  Or at least rinse your mouth out after you drink your formula.



Applied Nutrition corp  http://www.medicalfood.com/
Phenylade  essentials 









phenylade amino acid blend
 
 













NUTRICIA -  www.shsna.com\

Periflex Advance-unflavored, orange, chocolate
 







Phe Maxamum Drink® (orange and berry) 
 












Lophlex™   













Milupa PKU 3   










CAMBROOKE FOODS  www.cambrookefoods.com

Bettermilk                  
 
 



Camino pro®-sorbet stix,  sorbet drinks  















SOLACE  http://www.solacenutrition.com
 


PreKUnil tablets-  
 
 


 

BIOMARIN 

 

KUVAN
 


 


ABBOTT NUTRITION  www.abbottnutrition.com
Phennex TM   




 






Cambrooke foods came out with probably the most tolerable of all the formulas--BetterMilk.  It's low volume, 1/4 cup water per envelope-or to taste.  I've found that it has a sweet scent...kind of like angel food cake batter.  The only downfall to this formula, is as it sits it gets thick and hard for me to drink/swallow.  I add grape gatoraid and kuvan tablets and drink it within 14 minutes and you don't get that "thickening"   I was switched to Kuvan, gatoraid & bettermilk combination  due to lower GI problems + burned it my throat from fruit juice. 




2 comments:

laurie said...

i will probably lose my teeth soon. they are chpping and falling apart.

laurie said...

i hate better milk. too sweet. made for the kids' tastes of course